Wednesday, June 11, 2008

Hard Things

I don't share my feelings well. I don't really like to talk about things that are bothering me. I guess since this is the closest thing that I have to a journal I should put something here to help me feel a little better. So here goes.... About six weeks ago at one of our routine weight checks for Kyler the pediatrician noticed his eyes were kind of weird. They would only align properly if his head was tilted to the left and his eye tended to wander to the outside, exitropia it's called. We had noticed his head was tilted earlier and thought that his muscles weren't strong enough to hold up his head. So we started physical therapy. Come to find out he tilts his head so that he can see. Well, the pediatrician recommended that we see a pediatric ophthalmologist in Boise and made the next available appointment for the last week in June. At this point I had an unsettling feeling. Two months seemed like such a long time to me, even though it wasn't an emergency really. Well, I read on a friend from high school's blog that her daughter saw eye doctor's in Salt Lake at Primary Children's. It hadn't even occurred to me to go there! Kels spent some time there when she was little and we loved it, they are so good with children. I found the number on the Internet and was able to book an appointment and it ended up being sixteen days earlier than the Boise appt. I have a sister-in-law in Layton so we had a place to stay so everything worked out great. Well, Monday we saw an internal medicine specialist and he thinks that Kyler has a very fast metabolism and we just need to feed him a lot. We will just keep up on his growth and make sure that he's growing as time goes on. Tuesday we headed to the ophthalmologist. The doctor saw some things that unless you've seen what he probably has, you might easily miss is because it is so rare and this doctor may be one of the few that has it and mostly because of the
resources available through Primary Children's and the university. By the time we would have noticed this is Boise we can be treating it in Salt Lake. This is one of those times I think that I really noticed the inspiration and intuition that you have as a mother. I'm sure that I use it every day on lots of little things, but this time definitely taught me that I need to listen more carefully in all things. Hopefully everything will go well with the continuing diagnosis and treatment for Kyler, we are headed back in a week for some Ct Scans and then from there we will know what our next steps are. I am so thankful for all of the moms who choose to share the little things in their lives through their blogs, it's crazy how something like this really can help others. We can all be an inspiration to someone else and help each other along the way, just with our everyday lives!

7 comments:

Walker Family said...

I am so glad that you are now sharing!!! It's okay that you do... I am glad that Kyler is getting the best care so that he can grow and be the best Kyler he can be..... I will be praying for you guys during all of this!!! They are so blessed to have such a wonderful mom who does everything in her power for them!!! Its inspiring to see moms like you! You kidos I am sure are so very proud of you!

karisa said...

I hope that you are able to find the answers to help your baby. Best wishes and hugs.

karisa said...

I hope that you continue to find answers to help your baby. Best wishes and hugs.

Mom2My6Kids said...

I hope that you start to get some answers and closure to some of these problems and not keep having more things pop up. You have definately had more than your share of stress these past few months. As a mom, it's hard to not stress out over all these "could be" things that the doctors suggest. I hope in between doctors you were able to relax a little and have some fun. Hang in there! If you need anything, I'm here.

Bateman said...

Your kids are so lucky to have you as a mom! You are an incredible person and you have got through hard things before and you have helped me get through hard things too! You are always in my thoughts and prayers and I am here for you anytime! Just let me know! Luv your guts!

Ben and Sara said...

I'm so glad that Kyler is getting the help he needs. It's amazing those little moments of inspiration you can get as a mother. I hope everything continues to go well and I know that he is getting the best professional care at Primary Children's. I'm glad you shared your experience on the blog, I was wondering how things were going. Good luck with your next appointment.
--Sara

julie said...

Heather thank you so much for posting this! I have thought about you and your family so much this last week! I am so sorry I didn't follow the feelings I had to call you,(lesson learned.) I want you to know you are always in our thoughts and prayers, especially in these challenging times. Kyler is such a strong boy just like his mom and I know everything is going to work out, it somehow always does! Please let me help you (I'll be calling), you can't be super-women all the time, besides that's what friends are for and we need the blessings too! Hang in there things will get better!